Communion Of Dreams


Machado-Joseph Disease: Management

One of the things people with MJD have found helpful is Medical Marijuana (MMJ). It helps to moderate pain, but more importantly, some of the available strains really make a difference in allowing people with the disease to sleep through the night.

See, one of the problems with MJD is that the twitching, cramping, and pain in the hands, feet, and legs is such that it disrupts sleep. This is something that I noticed particularly in the last few months, as my symptoms started developing, and I have a long way to go before it becomes diagnosable dystonia. So of course, anything that might help me sleep better is of interest. Because the key to dealing with this disease, since there is no cure, is to manage the symptoms to the greatest degree possible. That will allow me to make the best use of my functional time each day, and get the most enjoyment out of living.

And if MMJ will allow me to do that, then I’m game. So I’ve started looking into it. The problem is that it’s damned hard to separate out the quack “MMJ can cure EVERYTHING!” stuff from real, rigorous research. Of course, the demonization of all forms of cannabis by our government over the last half century hasn’t helped. Since it is still a “Schedule I” drug as far as the federal government is concerned, there are real limitations on what kind of science can be conducted on medical applications, which just opens the door to all kinds of outlandish claims. I swear, it’s like the ‘Snake Oil’ era of patent medicine, or the insane hype that went along with radium and other radioactive quackery early last century.

There’s no rush, since I’m not going to see about getting a MMJ card (available here in Missouri) before I have a definite diagnosis, though just on the basis of my chronic pain alone I could qualify. And for the time being I can just rely on the meds I already have (opioids, OTC stuff, booze). But I have been trying to educate myself from what trustworthy sources actually are available. Which, to be quite honest, is enough to drive one to drink.

Ironic, eh?

Jim Downey

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