Filed under: Alzheimer's, Amazon, Brave New World, Connections, Emergency, Failure, Faith healing, Feedback, Flu, General Musings, Government, Health, Kindle, New Horizons, Plague, Politics, Predictions, Religion, Science Fiction, Society, Survival, tech, Terrorism, Violence, Writing stuff | Tags: Alzheimer's, atherosclerosis, blogging, Brexit, care-giving, Communion of Dreams, election, faith healing, finance, health, heart attack, Her Final Year, jim downey, luck, miracles, myocardial infarction, politics, predictions, religion, Science Fiction, St. Cybi's Well, stent, survival, technology, theocracy
2016 was odd. Just plain odd.
On the one hand, I had the same dumpster-fire of a year that everyone had, in terms of notable deaths, bizarre & unexpected election results here and abroad, and surreal news & social trends.
On the other hand, I’m alive. Which is something of a small (technological) miracle.
I now understand better (thanks to more discussion with my doctors, research, and experience) what happened with my heart, and what it really meant. Turns out that I didn’t have any plaque build-up even in the convoluted artery in question, as I initially thought. No, it was just that badly kinked, and probably had been all my life. I had started to notice it just because of normal aging, meaning that the normal parts of my heart were slowly getting weaker.
In the last six months or so I have finally been able to strengthen the 1/3 of my heart which had never had proper blood supply. Meaning that now I am actually in better cardiac health than I have ever been before. I walk three miles most mornings (5-6 days a week, usually), and don’t feel the slightest bit fatigued from it. The other parts of my 58-year-old body may limit me, but my cardiac condition isn’t a problem at all. Part of me wonders what it would have been like to have had this kind of stamina when I was young and athletic. Another part of me realizes that those limitations helped me develop awareness and self-discipline which I may have missed, otherwise.
Related to that, as mentioned in this post, early last year our financial situation stabilized for the good. We still need to be reasonably prudent about how we go through life, but I no longer feel as if I am hanging on by my fingernails sometimes. Without that change, I may not have felt secure enough to have my heart checked out when I did — meaning that I was very much at risk for the slightest little blood clot to trigger a massive heart attack.
Unrelated to any of that, the election lead-up and results also proved to be both a blessing and a curse for me. I was astonished at the results of both the Brexit and US presidential elections (and no, I’m not going to argue the point in comments — so just refrain from making any on this topic), yet it solved a problem for me with writing St Cybi’s Well. See, in the alternate time-line of Communion of Dreams, prior to the onset of the fire-flu, the US had become an authoritarian, semi-theocratic state. But I was having a really hard time explaining how we had gotten to such a point when actually writing SCW; everything I came up with just seemed too outlandish for the willing suspension of disbelief on the part of the reader.
Well, that’s not a problem any longer. No, I’m not saying that I think that the US is headed for an authoritarian, semi-theocratic state … but because of the rhetoric and rise in power of some groups both in the US and the UK, that is no longer an unimaginable future. As a result, I have been revising the finished chapters of SCW to reflect these new insights, and I think that the book will be *much* stronger for it.
So yeah, I have really mixed feelings about 2016.
Oh well, I suppose that at least I’m around to have them. And that’s a good thing.
*You should watch this sometime. Fun movie.
Filed under: Alzheimer's, Amazon, Feedback, Health, Hospice, Kindle, Science Fiction | Tags: Aliens, Alzheimer's, Amazon, blogging, care-giving, caregiving, Communion of Dreams, direct publishing, feedback, health, Her Final Year, jim downey, John Bourke, Kindle, memoir, promotion, reviews, Science Fiction, writing
New review up at Amazon:
New Age Sci-Fi, October 15, 2015By A ReaderThis review is from: Communion of Dreams (Kindle Edition)I borrowed this book from the Prime lending library as I was in the mood for a good old sci-fi first contact story and the books description lead me to believe that’s what it was. The first part of the book was exactly that. But then it shifted and did become more of a spiritual, new age-y, story about aura’s, healing hands, meditative states, etc. that just happened to take place on Titan. That’s not a bad thing, but it just wasn’t what I was in the mood to read at the moment. I should have suspected as much as the cover art and title depict nothing alien/space related, my bad. The story was interesting and kept my attention, the writing was good, the ideas presented interesting. But heads-up, if you’re in the mood for aliens, this might not be the book to read.
Well, I can’t really disagree, but … huh.
And there’s also a new review of Her Final Year you might enjoy.
Have thoughts about either one? Comment here, there, or maybe even write your own review!
Filed under: Alzheimer's, Amazon, Hospice, Humor, Kindle, Marketing, Promotion, Science Fiction | Tags: Alzheimer's, Amazon, blogging, care-giving, Communion of Dreams, free, health, Her Final Year, hospice, humor, jim downey, John Bourke, Kindle, promotion, Science Fiction
Except fish. Fish don’t like books. At least as far as I know.
Filed under: Alzheimer's, Amazon, Brave New World, Connections, General Musings, Guns, Kindle, Marketing, Promotion, Science Fiction, tech, Violence, Writing stuff | Tags: Alzheimer's, Amazon, blogging, Communion of Dreams, direct publishing, free, Guns & Money, Her Final Year, jim downey, John Bourke, Kindle, laser, Lawyers, National Interest, naval, predictions, promotion, railgun, Robert Farley, Science Fiction, technology, warship, writing
The biggest reason to build big ships may be the promise of electricity generation. The most interesting innovations in naval technology involve sensors, unmanned technology, lasers, and railguns, most of which are power intensive. Larger ships can generate more power, increasing not only their lethality (rail guns, sensors) but also their survivability (anti-missile lasers, defensive sensor technologies, close-defense systems).
Unmanned technology. Lasers. Railguns.
Tell me that ain’t living in a science fiction future.
Filed under: Alzheimer's, Connections, Diane Rehm, Health, Hospice, Kindle, NPR, Science, Society, tech | Tags: Alzheimer's, Alzheimer's Association, Alzheimer's Association International Conference, Alzheimer’s Disease Neuroimaging Initiative, amyloid plaque, blogging, care-giving, CNN, Diane Rehm, free, health, Her Final Year, hospice, jim downey, John Bourke, Keith Fargo, Kindle, Lauran Neergaard, Liza Lucas, Murali Doraiswamy, Nancy Donovan, NPR, science, tau protein, technology
It’s been seven and a half years since my mother-in-law passed away from Alzheimer’s. A couple years later, we published Her Final Year. Since then I have kept an eye on ongoing research concerning the disease, and have mentioned it here when I thought appropriate. This week, there are several new promising developments to come out of the Alzheimer’s Association International Conference in Washington, D.C.
First is a saliva test for metabolites which indicate brain changes associated with Alzheimer’s. From this CNN article:
Researchers from the University of Alberta in Canada analyzed saliva samples of fewer than 100 people, divided into three groups based on cognitive ability: 35 with normal aging cognition, 25 with mild cognitive impairment and 22 with Alzheimer’s disease.
Using protein analysis technology, researchers examined the saliva of each individual, analyzing nearly 6,000 metabolites, which are small molecules that are byproducts of chemical reactions in the brain.
The team then discovered specific biomarkers (or patterns of metabolites) in the groups with known Alzheimer’s or mild cognitive impairment, in comparison with the natural aging group, and tested the biomarkers as predictors of cognitive performance.
It’s a very small study, but if additional research into this area bares out the results, this could be a quick and inexpensive screening tool to help determine who may be at risk for Alzheimer’s. Because, as discussed in a very good segment on the Diane Rehm show this morning, early detection helps even though there are limited treatment options for Alzheimer’s (and other age-related dementias). That’s because there are things you can do to prepare for managing the disease: establish necessary legal protections (things like family trusts and durable power of attorney), educate family members and caregivers, investigate daycare and assisted living options, participate in drug and treatment trials, and similar.
Speaking of drug and treatment trials, the Alzheimer’s Association has a very useful online tool for Alzheimer’s patients, care-providers, and family members:
Alzheimer’s Association TrialMatch is a free, easy-to-use clinical studies matching service that connects individuals with Alzheimer’s, caregivers, healthy volunteers and physicians with current studies. Our continuously updated database of Alzheimer’s clinical trials includes more than 225 promising clinical studies being conducted at nearly 700 trials sites across the country.
This is just one of the new tools which have been made available since we cared for Martha Sr. Because in the last 7+ years, there has been a lot of research and a growing awareness that Alzheimer’s will touch nearly every family at some time.
One of the other pieces of information to come out of this week’s is that women seem to be more susceptible to the disease, and experience a faster decline in their mental abilities than men:
Older women with mild memory impairment worsened about twice as fast as men, researchers reported Tuesday, part of an effort to unravel why women are especially hard-hit by Alzheimer’s.
Nearly two-thirds of Americans with Alzheimer’s are women.
At age 65, seemingly healthy women have about a 1 in 6 chance of developing Alzheimer’s during the rest of their lives, compared with a 1 in 11 chance for men. Scientists once thought the disparity was just because women tend to live longer — but there’s increasing agreement that something else makes women more vulnerable.
There are a number of other factors which can have an impact on those numbers, of course. But even accounting for differences due to education, lifestyle, and social status, the discrepancy between men and women could not be accounted for. And having close family who had Alzheimer’s is a substantial risk factor, about doubling your chances of developing the disease. As is having any kind of major health crises requiring either hospitalization or surgery under general anesthesia. In each and every case, men seem to fare better than women.
That may not seem to be a “promising development”, particularly if you are a woman in the high-risk category/categories. But it is, in the sense that scientists are now coming to understand the disease much, much better than they did just a decade ago. When we cared for Martha Sr, there really wasn’t a good diagnostic tool to determine whether or not someone had Alzheimer’s — it was a diagnosis confirmed postmortem. Now there are very good imaging tools available for amyloid plaque and tau protein, as detailed at the Alzheimer’s Disease Neuroimaging Initiative.
As I noted above, there are still very limited treatment and drug options, though even there some hopeful results have been reported at the Conference. But real progress has been made. Alzheimer’s no longer needs to be a devastating diagnosis, something to be feared and hidden. If you, or someone you love, is showing any signs of memory or cognitive impairment, seek help. It’s even possible that through participation in some of the clinical trials you can be part of the solution.
PS: As noted previously, the Kindle edition of Her Final Year is available as a free download on the first of each month.
Filed under: Connections, Constitution, Fireworks, General Musings, Government, Kindle, Science Fiction, Society | Tags: Amazon, America, blogging, Civil War, Communion of Dreams, direct publishing, Fourth of July, free, freedom, history, Independence Day, jim downey, Kindle, promotion, Science Fiction
I wrote this nine years ago, and posted it to this blog seven years ago. It seemed like a good time to repost it.
Thoughts on This Day
One birthday, when I was nine or ten, I woke with anticipation of the presents I would receive. Still in my pajamas I rushed into the kitchen where my parents were having coffee, expecting to get the loot which was rightfully mine. My father happily handed over a small, wrapped box. I opened it eagerly, to find a little American flag on a wooden stick. My father said that since my birthday was July 4th, he thought I would appreciate the gift.
Horror-struck first at not getting anything better, then a moment later at my own greed, I guiltily told my parents that I thought it was a fine gift.
After a moment, of course, my folks brought out my real presents, and there was a fair amount of good-natured teasing and laughing about the little trick they had played on me.
That was almost 40 years ago, and I can no longer tell you what presents I received that day. But the lesson in expectations and perspective my dad taught me that morning always remained with me. My dad had been a Marine, fought in Korea, and was a deeply patriotic cop who was killed while on duty a couple of years after that birthday. I have no idea what happened to that little flag on a stick, but I do still have the flag taken from my father’s coffin, carefully and perfectly folded at the graveside when we buried him.
I’ve never looked at the American flag without remembering what a fine gift it really is and, as so many others have written, what it represents in terms of sacrifice. I love my country, as any Firecracker Baby is probably destined to do. You just can’t ignore all that early training of patriotism, fireworks, and presents all tied up together.
But that doesn’t mean that I am blinded by patriotism. As I’ve matured and gained life experience, I’ve learned many other lessons. Lessons about tempering expectations, living with occasional disappointment, accepting that things don’t always work out the way you plan no matter how hard you work, how good your intentions, or how deserving you are. Still, you learn, grow, and do the best you can. This, it seems, is also the story of America. I believe we are an exceptional people, holding great potential, with our best years still to come. But nothing is guaranteed. We must honestly, and sometimes painfully, confront our failures, learn from them, and move on. The original founders of our country were brilliant, but flawed as all humans are flawed. Some of their errors led directly to the Civil War, that great bloody second revolution of the human spirit. That they made mistakes does not negate their greatness; rather, it shows us our potential even though we are not perfect. They knew, as we should know, that only we are responsible for our self-determination. Not a king, not a God, not a ruling political class. Us.
Today we’ve been gifted with a small box with a flag inside. A token of our history. Let us not take it for granted. Let us not think that the thing itself is more important than what it represents. Let us look on it and declare our own responsibility, our own self-determination.
Happy Independence Day.
Filed under: Alzheimer's, Amazon, Connections, Feedback, Health, Hospice, Kindle, Marketing, Promotion, Publishing, Science Fiction | Tags: Alzheimer's, Amazon, blogging, care-giving, caregiving, Communion of Dreams, direct publishing, feedback, free, health, Her Final Year, hope, jim downey, John Bourke, Kindle, literature, memoir, promotion, reviews, Science Fiction, writing
Playing a bit off of the title of my previous blog post …
Why? Because offering free downloads is one of the basic promotional tools on the Kindle platform. It’s a way to generate sales and interest in a book. And also because it’s important to get the books to readers who may not be able to afford even the modest price of an e-book. For someone struggling as a care-provider, sometimes even a $2.99 price tag can be hard to budget for. Likewise for people who find themselves on hard times, and need a little hope and escape … something which I like to think Communion of Dreams can provide.
So we’ll give this a try. If you know anyone who might enjoy either or both books, let ’em know that they can download them for free tomorrow. And July 1st. And August 1st. And …