Communion Of Dreams


To get your Monday started off right.

You may recall the 2001 effort to get people to register their religion as “Jedi”. Like some of the other silliness at the turn of the century, it was mostly harmless.

Well, it seems that earlier this year a couple of brothers in Wales decided to take it a step further:

Force strong for new Jedi church

Two Star Wars-loving brothers planning a Jedi church hope it will be much nearer than a galaxy far, far away.

Barney and Daniel Jones want fellow devotees to be able to join them close to their home on Anglesey.

Barney, 26 – or Master Jonba Hehol – and Daniel, 21 – Master Morda Hehol – head the UK Church of the Jedi, in honour of the film’s good knights.

And you gotta give the guys credit – they know how to keep their name in the news:

Anglesey Jedi Church announces plans for Moon colony

AN ORDER of Holyhead Jedis has begun steps to colonise the moon.

The UK Church of the Jedi, run by brothers Daniel and Barney Jones, of Holyhead, are setting up a micro nation on the moon.

They have bought a plot of land on the moon and the order plan to have a capital city and appoint worthy Jedi to positions such as Head of Galactic Affairs and Country Ambassador.

Alas, with notoriety also comes occasional tragedy:

Star Wars comes to Holyhead as Darth Vader strikes back in Jedi’s back garden

A Star Wars fan got closer to his idols than he would perhaps have liked when he was attacked in his garden by Darth Vader.

Jedi Master Jonba Hehol – known to family and friends as Barney Jones, 36, of Holyhead – was giving a TV interview in his back garden for a documentary when a man, dressed in a black bin-bag and wearing Darth Vader’s trademark shiny black helmet, leapt over his garden fence.

Wielding a metal crutch – his lightsaber presumably being in for repairs – the Sith Lord proceeded to lay about his opponent, whose Jedi powers proved inadequate for the task of defending himself.

After besting Master Hehol in single combat, Vader, who The Sun reports was under the influence of alcohol, went on to assault the camera crew and a hairdresser.

It’s always something.

Jim Downey

(Via MeFi.  Cross posted to UTI.)



I can’t resist . . .
March 29, 2008, 10:40 pm
Filed under: Humor, Music, PZ Myers, Religion, Science, Society, YouTube

. . . cross-posting this item from UTI, even though I put it up there this morning and the thing is all over the web now. It’s just too damned funny. The version below is low-res; be sure to go to YouTube and click on the “view this in higher resolution” tab, then expand it to fill your monitor.

Jim D.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

OK, just in case you haven’t seen this over at PZ’s or elsewhere, here’s a hilarious and brilliantly done satire:

It takes some deconstructing, but the consensus is that it is indeed pro-science/skepticism.

UPDATE: Here are the lyrics, and here is a brief bit on the ‘cast’ – kudos to both authors!

Jim Downey



The one thing you know.

There is one thing, absolutely, that you know – but most people don’t really believe it. That you are alive, and that you are going to die.

“Wait!” you say, “That’s two things!”

No, it’s not. Life and death are two aspects of the same thing. It is the fundamental duality of our nature. Now, the first part of that equation is generally accepted, but the second part is widely denied – hence the desire to split it into two separate items.

But it hasn’t always been like this. Most of human history, people have understood the connection – they were familiar and comfortable with death (even if it wasn’t to be desired). I’d even go so far as to say that much of the world today is still this way. It is really only in the last couple-three generations that those in the richer countries have lost a day-to-day connection with death.

Now, I lost my parents in my early adolescence, one to violence and the other to accident. I came to understand death, and mortality, just at the time when my world view was being shaped, just as I was developing the ability to understand the world in abstract terms. This made me different than most of my contemporaries, though more like how most humans have existed through history. Even through my crazy teen years I never once thought that I would live forever – I had no illusions that death could come suddenly and unexpectedly, and that it would eventually come no matter what I might try to do to postpone it. And while most people come to eventually accept death intellectually, I think that without experiencing it as part of your understanding of the world, you tend to never really internalize it. The more people live with death – whether because of growing up with it, or being immersed in it due to war or disaster – the more they tend to understand and accept it. In insulating ourselves, and our children, from the experience of real death, I think we have cheated ourselves of an understanding of it.

And those things we do not understand – in our gut – we fear. And too often, those things we fear, we deny.

OK, so what am I going on about, talking about death here on this nice, bright, pleasant (but a bit cold) Saturday morning?

This: Universe Today ran a piece a couple of days ago about a proposal by Jim McLane, a NASA engineer of over 20 years who now works for a private engineering firm, to do a one-person, one-way trip to Mars. From the article:

A return to the “get it done” attitude of the 1960’s and a goal of a manned landing within a short time frame, like Apollo, is the only way we’ll get to Mars, McLane believes. Additionally, a no-return, solo mission solves many of the problems currently facing a round-trip, multiple person crew.

“When we eliminate the need to launch off Mars, we remove the mission’s most daunting obstacle,” said McLane. And because of a small crew size, the spacecraft could be smaller and the need for consumables and supplies would be decreased, making the mission cheaper and less complicated.

While some might classify this as a suicide mission, McLane feels the concept is completely logical.

“There would be tremendous risk, yes,” said McLane, “but I don’t think that’s guaranteed any more than you would say climbing a mountain alone is a suicide mission. People do dangerous things all the time, and this would be something really unique, to go to Mars. I don’t think there would be any shortage of people willing to volunteer for the mission. Lindbergh was someone who was willing to risk everything because it was worth it. I don’t think it will be hard to find another Lindbergh to go to Mars. That will be the easiest part of this whole program.”

Now, some variation of this idea has been kicked around previously, even going back to the early days of thinking about getting someone to the Moon. McLane is to be credited with pushing the idea, but it isn’t really original. I’ve seen variations of the idea in SF as well.

Read the column. There is some fudging about whether or not this is really a suicide trip, or whether future tech would allow for the eventual return of the participant, or that this first person would be the initial colonist for an outpost.

But what I found particularly interesting – and insightful – were the attitudes displayed in the extensive comments (almost 200 at the time I am writing this). You only need to sample these to find out that a lot of people are saying that it would be just horrid to “condemn someone to die” for a pointless trip to Mars.

Folks, here’s a reminder: we’re all already condemned to die. Only the timing and manner of our death is unknown.

Plenty of people do things that they know will carry a high risk of death. Some do it for a thrill – there is a decided adrenalin rush in thinking you are going to die (and I think that this explains the popularity of both horror flicks and various games where ‘death’ is a possibility). But for those who understand death, they engage in these risks with an acceptance that while death may come to them, the goal is still worthy. They might be misguided, or misinformed, miscalculating either the amount of risk or the worthiness of the goal. But they are nonetheless making a choice that is not reflected out of fear or ignorance of death – rather, it is saying that they think that the possible timing and manner of their death is worth changing for the goal.

Because that is all you are actually doing when you take any kind of additional risk: saying, effectively, that you are willing to sacrifice some additional time living. You are *not* saying that you are willing to accept non-existence versus existence.  We are not “immortal unless killed” – we are going to die, sooner or later, in the fullness of time.  Get that in your head, and then deciding to do something like take a one-way ticket to Mars doesn’t seem so daunting.

Jim Downey

(Via MeFi.  Cross-posted to UTI.)



Ecclesiastes VIII 15

A good friend and I have a running joke about getting our six chickens and a goat, and retiring from the world to farm while things fall slowly into ruin.

But the thing is, it’s not a joke. Not really.

I’m not saying that everyone should fall into a paranoid spiral, become some kind of survivalist nut. I’m not ready to do that. But when you read something like this, it does make you wonder. An excerpt (please note, I added the embedded links in the following):

For decades, his [James Lovelock’s] advocacy of nuclear power appalled fellow environmentalists – but recently increasing numbers of them have come around to his way of thinking. His latest book, The Revenge of Gaia, predicts that by 2020 extreme weather will be the norm, causing global devastation; that by 2040 much of Europe will be Saharan; and parts of London will be underwater. The most recent Intergovernmental Panel on Climate Change (IPCC) report deploys less dramatic language – but its calculations aren’t a million miles away from his.

* * *

On the day we meet, the Daily Mail has launched a campaign to rid Britain of plastic shopping bags. The initiative sits comfortably within the current canon of eco ideas, next to ethical consumption, carbon offsetting, recycling and so on – all of which are premised on the calculation that individual lifestyle adjustments can still save the planet. This is, Lovelock says, a deluded fantasy. Most of the things we have been told to do might make us feel better, but they won’t make any difference. Global warming has passed the tipping point, and catastrophe is unstoppable.

“It’s just too late for it,” he says. “Perhaps if we’d gone along routes like that in 1967, it might have helped. But we don’t have time. All these standard green things, like sustainable development, I think these are just words that mean nothing. I get an awful lot of people coming to me saying you can’t say that, because it gives us nothing to do. I say on the contrary, it gives us an immense amount to do. Just not the kinds of things you want to do.”

Too late? Yeah, maybe so:

I opened the email to find an article about the most recent “comments and projections” by James Hansen. Hansen, you may know, is perhaps the most famous NASA climate change scientist. He’s the man who testified before Congress twenty years ago that the planet was warming and that people were the source of that warming. He’s the man who was pressured by senior officials at NASA, at the behest of the current administration, to tone down his reports about the impacts of climate change. Thankfully he seems to have resisted that pressure.

I read the article and then I read a related article by Bill McKibben. Hansen says, and McKibben underscores, that there is a critical maximum number of parts per million of carbon dioxide in the atmosphere to heed to prevent climatic catastrophe. That number, he says, is between 300 and 350.

* * *

Can you guess how many ppm of CO2 are in the atmosphere now? Slightly below 350? Slightly above?

We’re at 383 parts per million and counting, well past the number Hansen suggests is critical. We are past it by a lot. We were at 325 parts per million in 1970! Um, I don’t think we can just suck all that carbon back out, ask billions of people not to have been born, tear down all of those new suburban developments, return to non-fossil-based agriculture, and innocently pretend it’s thirty years ago.

So, what to do?

Well, that’s the problem. Lovelock says that you might as well enjoy life while you can, as much as you can, before the shit hits the fan. The second passage, from a very long blog entry evidently by Sally Erickson, explores some options but focuses on the need to convince people that the shit has essentially already hit the fan, in order to radically change behavior sufficient to have a hope to save the world.

I am not sanguine about the prospects of making radical change, nor what that would really mean for our civil liberties. I think, unfortunately, that the mass of humanity just cannot deal with a problem until it becomes an actual, in-your-face emergency, but that once in it, we usually do a fairly decent job of slogging our way out.

This is one of the reasons that I decided to choose a pandemic flu as the cataclysm behind the ‘history’ of Communion of Dreams. As I have discussed previously, I made that decision for reasons of plotting, but also because I actually believe that we’ll likely experience some kind of mass die-off of humanity sometime in the next century, whether due to war, asteroid impact, plague, global warming or some other disaster. We’ve just been too lucky, too long.

But in a way, it is an odd sort of optimism, as reflected in the book, and as shared by James Lovelock (from the same Guardian article):

“There have been seven disasters since humans came on the earth, very similar to the one that’s just about to happen. I think these events keep separating the wheat from the chaff. And eventually we’ll have a human on the planet that really does understand it and can live with it properly. That’s the source of my optimism.”

And not to end it there, here’s a little something for counterpoint, I suppose:

Jim Downey

(Via MeFi here and here.)



Adrift.
February 10, 2008, 12:56 pm
Filed under: Flu, General Musings, Health, N. Am. Welsh Choir, Predictions, Preparedness, Religion, Sleep, Weather

The memorial in all its details went off just fine yesterday. My wife’s quartet from the North American Welsh Choir did a wonderful performance. The minister conducting the ceremonies (an old family friend) kept things running smoothly and without a lot of inappropriate god-bothering. Friends and family made tributes to Martha Sr. All that you could ask for in a memorial service, even good weather (almost 50 and sunny) for early February here in the Midwest.

We had a relaxed reception at my Brother-in-law’s place, plenty of good food and good company. Then a relaxed evening here with some of the family who came in from out of town. And likewise this morning an early brunch before some folks needed to catch flights home.

And now I feel adrift. Unsure. All the scheduled things are resolved. Other things pending, but nothing which really needs either my involvement or direction. This could be a touch of something I’m coming down with (there were plenty of people with the usual colds/flus common this time of year). My immune system is shot, for the same reasons that my weight is so excessive: lack of sleep, insufficient exercise, general stress. I look forward to getting it back.

But it could also simply be the change borne by Martha Sr’s passing. All the routines, all the usual focus of my life, are no longer applicable. A friend said that it will take time to mash down the grooves of my life and carve new ones, and she’s right. I expect it will take most of the coming year to make the change complete.

So, adrift. The storm has passed, and now things are quiet.

I think I’ll get a nap.

Jim Downey



“I’ve got a bad feeling about this.”

I usually save the ‘political’ stuff for UTI or dKos. And, for the most part, I intend to continue that policy even through what promises to be a very ugly election year here in the U.S.

But I want to chat here about this morning’s assassination of Benazir Bhutto in Pakistan. Why? Because it ties in with Communion of Dreams a bit. And because I think that the news really should be examined more widely than in just ‘political’ or ‘news’ forums.

First, the Communion connection. [Mild spoilers to follow next paragraph.]

In the “history” of the novel, following the chaos of the world-wide pandemic flu, I have an unspecified regional nuclear war in Asia. The characters reference it in terms of the state of things in China and Chu Ling’s health. I kept the specifics of it rather vague, since I see about a dozen different ways that such insanity could easily occur, involving China, India, Taiwan, Japan, North and South Korea, and Pakistan. And, once started, such a regional conflict could easily draw in more than the initial combatants, depending on exactly what the alignment of allied countries was at the time. This would further cripple the economic powerhouses of Asia, and could be part of the motivation the Japanese would have for seeking to establish a colony on Mars.

OK, that’s fiction. I actually worry that reality could be worse. Worse? Yeah – rather than ‘just’ a regional war, this could precipitate a wider war, or draw in the U.S. in our current paranoia about Islamic fundamentalism.

Now, why do I say this? I’m not an expert on Pakistan’s political situation. In fact, I’d readily admit that I do not understand even all that I know about Pakistan’s current political situation – and what I know is quite limited. But Pakistan is only one part of this puzzle. At least as important are other components – the deteriorating relationship between the US and Russia, a global recession on the horizon, ongoing tensions of every variety in the Middle East, and our own jingoism and aforementioned paranoia here.

To sum it all up, I’ve got a bad feeling about this. It is the exact same sort of feeling I had when I heard of another assassination of a political figure several years ago: Ahmad Shah Massoud. It’s doubtful that you recognize the name. But maybe this will ring a bell:

Massoud was the target of a suicide attack which occurred at Khwaja Bahauddin on September 9, 2001. The attackers were two Arabs, Dahmane Abd al-Sattar and Bouraoui el-Ouaer, who claimed to be Belgians originally from Morocco. However, their passports turned out to be stolen and their nationality Tunisian. The assassins claimed to want to interview Massoud and set off a bomb in a belt worn by the cameraman while asking Massoud questions. The explosion also killed Mohammed Asim Suhail, a Northern Alliance official, while Mohammad Fahim Dashty and Massoud Khalili were injured. The assassins may have intended to attack several Northern Alliance council members simultaneously.[citation needed] Bouraoui was killed by the explosion and Dahmane was captured and shot while trying to escape. Massoud was rushed after the attack to the Indian Military hospital at Farkhor, Tajikistan which is now Farkhor Air Base. The news of Massoud’s death was reported almost immediately, appearing in European and North American newspapers on 10 September 2001. It was quickly overshadowed by the September 11, 2001 attacks, which proved to be the terrorist attack that Massoud had warned against.

The timing of the assassination, two days before the September 11, 2001 attacks on the United States, is considered significant by commentators who believe Osama bin Laden ordered the assassination to help his Taliban protectors and ensure he would have their protection and cooperation in Afghanistan. The assassins are also reported to have shown support for bin Laden in their questions of Massoud. The Pakistan Inter-Services Intelligence (ISI) and Mujahideen leader Abdul Rasul Sayyaf, an Afghan Wahhabi Islamist, have also been mentioned as a possible organizers or assisters of the assassins.[19] Massoud was a strong opponent of Pakistani involvement in Afghanistan. The assassins are said to have entered Northern Alliance territory under the auspices of the Abdul Rasul Sayyaf and had his assistance in bypassing “normal security procedures.”[20]

So, there it is. An earlier attempt on Benazir Bhutto raised suspicions that the Pakistani security forces were involved. The method of attack was similar this time around, and only different from the assassination of Massoud in scope. Pakistan is struggling with democracy, martial law had just been lifted (and may actually be declared again by the time I am done writing this), there are known elements in the Pakistani government which are supportive of the Taliban (and Osama bin Laden), and they have nuclear weapons.

When I heard the news of Bhutto’s assassination this morning on NPR, I flashed back to that moment in September of 2001 when I heard of Massoud. And a chill ran up my spine.

Jim Downey



“I hope I’ve made the right decision.”
December 21, 2007, 10:46 am
Filed under: Alzheimer's, General Musings, Health, Hospice, Religion, Sleep, Society

I walked into the dark room, stepped up to the bed. My MIL looked up at me, and said “I don’t like these rails and straps.”

There are the standard ‘hospital rails’ on the side of her bed. And since she’s several times attempted to climb over them (and broken bones in the subsequent fall), we put some nylon straps across from one rail to the other in a sort-of cargo net arrangement. It allows her to move freely in bed, but stops her from trying to climb out on her own. “Well, I’m sorry, but they need to stay on.”

She smiled. “Doesn’t matter – I’ve decided that I’m going to leave today, go back home to Missouri.”

We live in Missouri. But I didn’t want to contradict her, not that early in the morning when there would be little point to it. If she went back to sleep, she’d likely forget the conversation completely, anyway. “That’s fine. But for now try and go back to sleep – you don’t get up until 8:00.”

“OK.”

* * * * * * * * * * * * *

While I am not religious (hardly), I nonetheless enjoy some aspects of the holiday season. Working in small-market radio for four years between college and grad school forever traumatized me in regards to Christmas songs of every stripe, but I enjoy gift-giving, feasting, some good Christmas cheer with family and friends. Yesterday afternoon during our ‘respite’ break, my wife and I went out and selected a tree from the family farm – cedar, the traditional family tree – and brought it home. Now that it is settling, we’ll get it decorated some time this weekend.

That’s late for us, and we got a smaller tree than usual. Simple reason for this: it’s less work. And right now, just about anything that’s less work is the default position.

* * * * * * * * * * * * *

Our regular hospice nurse was on vacation this week, so the agency made arrangements for another nurse to come by and check on my MIL. She arrived on time, bringing supplies and meds, and went in to chat with my MIL.

“I read that nice article about you!” she told my MIL.

“Article?” asked my MIL.

Out of sight of my MIL, I shook my head at the nurse, mouthed the words “She doesn’t remember it.”

She nodded.

I spoke to my MIL “She’s just talking about a nice article that was in the paper, about people who care for their loved ones at home when they get older.”

“Oh, did you write it?”

It surprises me sometimes the things that she remembers. I used to write a column for the paper. “No, I didn’t write it.”

“But you used to write such nice things.”

* * * * * * * * * * * * *

I’ve never obsessed about getting presents to people “on time” – most of my friends and family have busy lives themselves, and understand how things stand here with us. But this year we’ve really been caught short on planning, and our shopping has been sporadic, at best. I’ve been able to take care of a lot of routine things, and gotten a couple of special gifts. But for the most part I just haven’t had the energy and focus to try and find the right gifts for others. And the shopping we usually do for my MIL just hasn’t gotten done at all this year. That’ll be a disappointment to some.

* * * * * * * * * * * * *

I walked out with the hospice nurse when she was done checking over my MIL. Either my wife or I usually do this, so we can go over info we didn’t necessarily want to discuss in front of my MIL, the other staying and helping get my MIL dressed or back into bed.

“Anything to add?” she asked.

“No, not really. We’re just unsure of where we are. Not knowing is difficult.”

“Well, I can’t say for sure. But the end could come fairly quickly. You’ll just have to let us know if you see a sudden downturn, so we can be here every day rather than just weekly.”

I nodded.

“You know, you guys are doing just an incredible job in caring for her. I wish that half of our patients got even half as good care as your MIL is getting.”

“Thanks.”

And as I turned to go up the stairs, back into the house, eyes watering, she repeated: “You guys are doing an incredible job.”

Then why do I feel guilty? Like I should be doing more?

* * * * * * * * * * * * *

“I hope I’ve made the right decision.”

“What decision is that?” asked my wife, as she helped her mom sit up on the side of the bed.

“Well, I think it’s time I went home. I’ve enjoyed my stay, but I think that I should be getting back.”

“That’s fine,” said my wife, putting slippers on my MIL’s feet. “But how about some breakfast, first?”

“That sounds nice, dear.”

* * * * * * * * * * * * *

Jim Downey

(Cross-posted to dKos.)



A little bit crazy.
December 6, 2007, 1:35 pm
Filed under: Bipolar, Depression, Health, Religion, Society

I suffer from a mild form of bipolar disorder, as I have written about previously. Looking back, it started in adolescence, though I didn’t understand what was going on until my mid-20s. It is mild, though, and I have never suffered either a hypomanic or major depressive episode (though I have had some very dark periods), and have been able to control the disorder with minimal impact on my life. In this sense, I guess you can say that I am a little bit crazy – nothing major, nothing which requires hospitalization or heavy pharmaceuticals, nothing which puts my life at risk. I’m just a little bit crazy.

Being a ‘little bit crazy’ isn’t like being a ‘little bit pregnant’ – there is a range of severity with any mental health issue, just as there is with almost any other kind of health issue. You can have a mild case of the flu, which can be annoying, but doesn’t require much in the way of treatment – or you can have the kind of flu which can kill you if you don’t have medical intervention (and perhaps even then). You can have, say, a rotator cuff problem which requires nothing more than regular light exercise, or you can have such significant shoulder problems that surgery is required. I think that this is the thing which most people don’t really consider when it comes to mental health, because of the stigma attached to mental “illness”.

And make no mistake – there is still a huge stigma attached to any mental health ‘problem’. While I’ve known for about 25 years that I’ve suffered from this mild bipolar condition, I’ve largely kept that to myself, for this very reason. Attitudes are changing somewhat, but still . . .

One good example that I have seen played out countless times in discussions about religion: atheists see belief in God as essentially irrational, in that there is no demonstrable “proof” that such an entity exists. That’s why religious belief is called “faith”. Yet if you say this, in almost any form or phraseology that I have seen over the decades, people will instantly assume that you’re saying that all believers are “delusional” and basically “insane”. And it’s not just the people of faith who will think this – I’ve seen plenty of atheists jump to the same conclusion.

But that’s silly. There is clearly a difference between types of religious faith, as well as degree, just as there is in the range and severity of mental health ‘problems’. I dare say that most people who don’t really spend a lot of time thinking about it have what can be characterized as only a nominal religiosity – ask them, and they’ll say that they believe that there’s a God, but they don’t really spend a lot of time dwelling on Him/It/Them. Even among the devout there is a wide range of manifestation of religious fervor – the little old lady who goes to her local church every Sunday and prays for relief from her arthritis pain is significantly different from the kook who straps on a bomb and goes off to blow up unbelievers. The couple who pray for the intervention of the Virgin to save the life of their child are different from, say, the guy who taps his bat three times against his left shoe before stepping up to the plate. Et cetera, et cetera.

I’ll be honest – I see all of this as ‘magical thinking’, and not grounded in reality. But it is not all the same. Much of it is harmless, just amusing and not truly toxic either to the believers or to the world. Just as my mild bipolar condition is not the same as severe bipolar disorder, let alone true depression or schizophrenia. I’ll be even more honest – most such ‘magical thinking’ is of very little real concern to me. I see the bulk of it as just adding some richness to society. And I wouldn’t even necessarily say that people should get rid of it. Hell, I can’t say that I really want to be rid of my mild bipolar condition – it is manageable, and there are benefits to it, and I’m used to it. Yeah, sure, in some ideal world I wouldn’t suffer the periodic bouts of mild depression, just as in some ideal world everyone was rational and grounded in reality.

But we don’t live in that ideal world. I’d settle for having a little superstition and magical thinking, acceptance of the fact that we all have our quirks and small problems, in exchange for getting rid of the toxic manifestations of religion as well as true mental illness. How about you?

Jim Downey

(Cross posted to UTI.)



“When does this plane land?”
September 3, 2007, 9:02 pm
Filed under: Alzheimer's, General Musings, Health, Predictions, Religion

“When does this plane land?”

“Mom, this is your home. Not an airplane.”

“Well, I don’t want to lose my glasses. I’ll need them.”

“I’ll make sure you have them.”

* * * * * * * * * * * * *

My wife and I have both noticed a lot more “journeying” reference from my MIL in the past few days. From such things as above, to stories of people waiting for her to return, to news that she is going “on a trip”.

Yeah, that’s probably right.

* * * * * * * * * * * * *

There’s a phenomenon familiar to those who deal with Alzheimer’s. It’s called “sundowning“. There are a lot of theories about why it happens, my own pet one is that someone with this disease works damned hard all day long to try and make sense of the world around them (which is scrambled to their perceptions and understanding), and by late in the afternoon or early evening, they’re just worn out. You know how you feel at the end of a long day at work? Same thing.

So we usually don’t worry about it when my MIL gets hit by this. Still, it’ll catch you completely off guard if you let it.

* * * * * * * * * * * * *

We’re not yet into our first full week of being back on Hospice. And I think that it didn’t come a moment too soon. My MIL is exhibiting more and more of the common signs of an approaching death. Her incontinence (and general body awareness) has gotten a lot worse in recent days. She’s shown signs of restlessness at odd times. There are other physiological cues.

But most notably, has been talk of seeing her long-dead parents, and a sense that they are waiting for her to “go on a trip” with them.

I’m an atheist. I also have little belief in any kind of soul or ‘life after death’. I try and be completely honest, yet not obnoxious about my beliefs. Yet when the other day my MIL looked at me and said that she was worried about her parents missing her, I told her that they left a message for us to care for her until they came to get her.

“To take me with them?”

“That’s right.”

“Up to heaven?”

“Yes.”

Why did I say this? Because she smiled happily at me when I did.

* * * * * * * * * * * * *

I think we’re all getting ready. Ready for her to die. And I will be relieved.

No, I’m not being morbid. Or cold. Or selfish. I’m being honest.

Yes, this has been a long and difficult journey, and as I’ve said, I will be glad to be on the other side of it. I’m deep-bones weary. But that is not really why I will be relieved at her passing.

No, I will be glad to see her freed from the pain. Not just the physical pain she suffers from her various health issues (though we do a pretty good job of palliative care, thanks to her doctors and our attentiveness). But rather the pain of confusion, and loss, and fear she suffers due to the dementia. There is only so much we can do to allay that particular pain, and with each passing day it gets a little bit worse, eclipsing her ability to cope while leaving her with a very fundamental fear.

‘When does this plane land?’ Soon, I hope – soon.

* * * * * * * * * * * * *

Jim Downey

(Cross posted to UTI.)



“Just go along.”

Many years ago, I read a book which changed how I view the world. It was William Allen’s The Nazi Seizure of Power: The Experience of a Single German Town 1922 – 1945. I no longer remember whether I read it for a college class, or just on my own. And I can no longer really tell you many of the details of the book, but there was one overriding lesson I took from it which remains: that most people will go along with changes instituted by authority figures, so long as those changes seem minor and “for the greater good”. Because the thing about the Nazi rise to power is that it was enabled by ‘good Germans’ – the vast population who were not Nazi ideologues, but were unwilling to stand up to incremental infringement of their civil rights because it would be just too much bother.

I see this as a recurring theme in human history. It is the rare individual who will resist such creeping authoritarianism directly, though many others will find ways to subvert or resist passively (as happened in the USSR and Soviet-block countries), and still more often people will just leave a country under an authoritarian regime given the chance. This is a common theme in literature, and certainly in Science Fiction (read just about anything by Heinlein for the most clear-cut examples), so certainly I was familiar with the trope. But to see how it actually played out in one small German town was sobering.

And it is always sobering to see it play out in small ways in our country today. One such example comes from Michael Righi, writing about his experience of being arrested at Circuit City because he refused first to show a store employee his receipt and let his bag be searched, and then for refusing to provide a cop (whom he summoned) a Driver’s License. From a summation which Righi sent to BoingBoing:

Today I was arrested by the Brooklyn, Ohio police department. It all started when I refused to show my receipt to the loss prevention employee at Circuit City, and it ended when a police officer arrested me for refusing to provide my driver’s license.

There are two interesting stories in one which I thought would be of interest to Boing Boing readers. The first involves the loss prevention employee physically preventing my egress from the property. The second story involves my right as a U.S. citizen to not have to show my papers when asked. (Despite having verbally identified myself, the officer arrested me for failing to provide a driver’s license while standing on a sidewalk.)

You can read the full account at Righi’s blog, and I would urge you to do so. It is disturbing that he was treated this way, and admirable that he stood up for his rights.

But what is most disturbing are the number of commentors who criticize Righi for doing so. These are your fellow citizens who are perfectly happy to “just go along” in the interests of expediency, efficiency (cost savings), and for the common good. They don’t see why Righi should object either to his treatment by Circuit City or by the demand from the police officer that he provide proof of identity.

Now, I’m not saying that the US is in some incipient form of Fascism. But there sure are plenty of people with authoritarian instincts, and even more who are willing to accommodate those instincts in day-to-day life. And that is how rights are lost, freedom forfeit.  As Righi puts it:

I understand that my day would have gone a lot smoother if I had agreed to let loss prevention inspect my bag. I understand that my day would have gone a lot smoother if I had agreed to hand over my driver’s license when asked by Officer Arroyo. However, I am not interested in living my life smoothly. I am interested in living my life on strong principles and standing up for my rights as a consumer, a U.S. citizen and a human being. Allowing stores to inspect our bags at will might seem like a trivial matter, but it creates an atmosphere of obedience which is a dangerous thing. Allowing police officers to see our papers at will might seem like a trivial matter, but it creates a fear-of-authority atmosphere which can be all too easily abused.

Jim Downey

(Cross posted to UTI.)




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