Filed under: Brave New World, Connections, Failure, Feedback, General Musings, Health, Predictions, Preparedness, Science, Science Fiction, Society, Survival, tech | Tags: atherosclerosis, blogging, choice, diet, echocardiography, electrocardiography, exercise, health, jim downey, luck, privilege, science, Science Fiction, society, stent, technology, Wikipedia
I got an object lesson in privilege yesterday. My privilege.
I went in for my first session/assessment for cardiac rehab, following the stent procedure I had two weeks ago. The RN who did my assessment had been a cardiac surgery nurse, and knew her stuff. She also had all of my medical records pertaining to my procedure, and was completely familiar with my overall health and particularly my cardiac health (which, as I have mentioned previously, is actually really good).
We went through what is the normal procedure for such things: I got hooked up to a heart monitor, she checked my blood oxygenation, my blood pressure, my pulse. All were excellent. Then we went through my exercise and dietary habits in pretty thorough detail, discussing the few points where my eating habits deviate from ‘accepted medical recommendations’ (which are actually just ‘outdated medical recommendations’ such as limiting how many eggs you eat in a week to just one or two) according to the forms she had to fill out. All that was routine, and the same material I had been over with at least half a dozen other medical professionals in the last month.
Then we got into discussing just exactly what the condition of my heart now was, and what was recommended to help me improve it, post-procedure. She started out with the model heart on the desk, relating it to how my own chart compared, and complimented me again on the fact that I basically have no other evidence of atherosclerosis or plaque build-up anywhere in my heart other than the one problem section of my RCA that they stented. She said something to the effect of “genetics plays a role, but undoubtedly your regular walking every morning for the last decade has made a huge difference.”
“I’m lucky. I’ve been able to arrange my life so that I could take the time out to do that, for the last dozen years or so,” I said.
She nodded. “A wise choice.”
“Well, not one a lot of people can make. Most people can’t just schedule an hour for daily exercise. Like I said, I’m lucky. Very lucky. ”
“True,” she said. “But I always tell people that whether or not to exercise is a choice they make.”
I paused, considered, then nodded. We went on with the rest of the assessment.
Why did I hesitate? Because in that moment — in her statement of my ‘choice’ — lies a perfect summation of my privilege.
I’m a ‘virtuous patient’, in the eyes of most of the medical community. I’m a nice guy, who is well educated, professional. I exercise regularly, eat (relatively) healthily, don’t smoke at all, and rarely drink to excess. I maintain good social integration, and work to have a happy marriage and a good support network of friends. I even floss more than is probably average.
So, since I do all those things, in their eyes the quirk of a fault that is my kinked coronary artery isn’t really my fault. It’s just a small bit of bad luck. A small bit which can be forgiven, because I make a lot of ‘good’ choices about how I go through life.
But while I have indeed made a number of choices which can be considered to be virtuous, my privilege lies in having been able to make those choices. Realistically, how many people who are earning minimum wage are able to plan to go walking through their neighborhood (or at the local YMCA or city activity center or mall) every morning? How many people living in a food desert have access to plenty of fresh fruit and vegetables? How many people who are actually obese (I need to lose a good 50 – 60 pounds to be at my ideal weight), would be perceived as being lazy rather than working to maintain good health? How many people have the formal education and time to stay on top of modern medical research and discussion of best practices such that they can discuss the nuances of diet and exercise and the role it plays in cardiac rehabilitation?
I could go on and on. But I’ll refrain. For those who are already concerned with such matters, it isn’t necessary. And for those who seldom or ever consider how privilege affects health, it won’t be sufficient. However, perhaps a few people — you? — will take the opportunity that my privilege has presented to realize that how we judge the choices of others comes mostly from how we perceive them as people.
Filed under: Brave New World, Connections, General Musings, Health, Science, Science Fiction, Society, Survival, tech | Tags: atherosclerosis, blogging, echocardiography, electrocardiography, health, heart attack, jim downey, luck, masculinity, miracles, myocardial infarction, science, Science Fiction, stent, technology, Wikipedia
This is a follow-up to my previous post.
I just sent the following message to my primary care doctor:
I wanted to take a moment and thank you. Your recommendation that I take an echo stress test likely saved my life.
You’ll probably get the cardiac cath results from Dr W, but it may not include an observation he made when he first examined me: that had I come to his practice for a routine exam, presenting the same symptoms I told you, he probably would not have suspected such a serious condition. But the echo stress test clearly demonstrated that there was a major problem. And that the cath procedure showed just how bad it was: 95-99% blockage in the lower part of my RCA.
The seriousness of that condition was masked by my overall/otherwise heart strength. But it could have *very* easily resulted in a serious M.I. or even death. Had you not picked up on the subtle indications we discussed, and taken the prudent step of recommending the echo stress test, my true heart condition may not have been discovered until it was far too late.
So, thank you. Your intelligence, education, and experience probably have added decades to my life.
Why am I sharing this?
Because I got extremely lucky. And I want others to benefit from that luck, and my experience, if possible.
As it turns out, the overall condition of my heart is remarkably good. The strength and efficiency of that muscle is at the very top range for normal healthy people, or at the lower end you’d find in a serious athlete. Furthermore, there are no other indications of atherosclerosis or plaque build-up.
However, due to either a genetic or developmental defect, the lower part of my RCA is badly kinked/convoluted, creating a situation where eddies in the blood circulation form, and allowing what plaque I do have in my system to accumulate, like a sandbar will develop as a result of a bend in a river. In my case, that accumulation had progressed to the point where just the slightest additional clump of plaque could have closed off the artery completely, allowing a part of my heart to die. That’s a classic heart attack, folks.
But the strength of my heart overall was such that it almost completely masked the condition of my RCA. It wasn’t until I was up to about 90% of my heart rate maximum while taking the stress test that indications of the problem surfaced. And even then, just how bad the situation was wasn’t fully known until the cath procedure was done. But when the cardiologist went in and directly observed the condition of my coronary arteries, he saw the problem. And with about 90 minutes of hard work, corrected it with a couple of long cardiac stents.
That was just three days ago. I actually left the hospital the next morning, and have been playing catch-up on things since then.
Think about that: for 90 minutes, a team of medical professionals were playing roto-rooter with the inside of a major artery of my heart. I was completely awake and unsedated through the whole thing. The next day I left the hospital, walking on my own without difficulty. This morning I got in my usual morning walk of a mile. For about another week I have to take it a little easy, to let the puncture site in my femoral artery completely heal, and for the next year I need to take blood thinners, but otherwise I don’t need extraordinary care.
That’s pretty miraculous, in my opinion. One of the everyday miracles which surround us, and which we seldom give due consideration. Stuff that not too long ago would have been considered science fiction.
Anyway, here’s my advice, though you’ve heard it before: pay attention to your body. Don’t succumb to toxic masculinity. Or, if you’re a woman, to the illusion that you’re immune. If you think that something is going on, get it checked out. A little embarrassment at being wrong beats dying.
Filed under: Art, Astronomy, Augmented Reality, Brave New World, Connections, Humor, Mars, NASA, Science, Science Fiction, Space | Tags: art, Eleanor Lutz, http://tabletopwhale.com/, humor, jim downey, maps, Mars, medieval, NASA, science, Science Fiction, space
Oh, this is just delightful:
Recently I’ve been really into old maps made by medieval explorers. I thought it would be fun to use their historical design style to illustrate our current adventures into unexplored territory. So here’s my hand-drawn topographic map of Mars, complete with official landmark names and rover landing sites.
Go check out the whole thing, but here’s a glimpse of the map itself (which is much larger on the original post):
You can even support the artist and buy a copy! Quick, before they’re all gone!
HT to Margo Lynn.
Filed under: Connections, Faith healing, Flu, Health, Pandemic, Predictions, Psychic abilities, Publishing, Religion, Science Fiction, Wales, Writing stuff | Tags: blogging, Communion of Dreams, Darnell Sidwell, direct publishing, fire-flu, flu, influenza, jim downey, Llangelynnin, pandemic, Science Fiction, snowdoniaguide.com, St. Cybi's Well, travel, video, Wales, writing
As I noted I probably would a little over a week ago, I’ve just wrapped up work on Chapter Fourteen: Llangelynnin of St Cybi’s Well. It’s a long chapter — twice as long as most of the chapters are — and a pivotal one, since it includes the first instance of the faith healing/psychic abilities as referenced in Communion of Dreams. Here’s a critical passage, which will resonate for those who have read CoD already, where Darnell Sidwell’s sister Megan first encounters the healing energy just as the fire-flu is becoming a pandemic:
She stepped into the small room of the well, her arms opening wide, her face lifting to the heavens. It was indeed as though she were drinking in the light he still saw there, or perhaps like she was drinking in rain as it fell. She stood thus for a long minute, perhaps two. Then slowly she knelt before the opening of the well, her hands coming together and plunging into the cold, still water. The light filling the small space seemed to swirl around, coalescing into her cupped hands as she raised them out of Celynin’s Well.
Darnell stepped inside the small roofless room, bending to help Megan stand. As she did, he looked down and saw that she had water in her hands, but not filling them. Rather, it was water as he knew it from his time in space: a slowly pulsing, shimmering sphere. It seemed to float just above the cradle made by her hands.
That brings me to a total of approximately 95,000 words. I still have one short transitional ‘interlude’, then three named chapters, then a brief ‘coda’, and the book will be finished. Probably another 25,000 – 30,000 words. Which will put it right at about the total length of Communion of Dreams.
What’s interesting for me is that this chapter has proven to be a pivotal one in another way: it feels now like I really am on the home stretch of this project. Just finishing this chapter has changed the whole creative energy for me. There’s still a lot of work to do, but it no longer feels … daunting.
Filed under: Amazon, Bipolar, Connections, Faith healing, Flu, Predictions, Religion, Science, Science Fiction, Wales, Writing stuff | Tags: blogging, Communion of Dreams, Darnell Sidwell, fire-flu, free, Her Final Year, jim downey, John Bourke, Kindle, Llangelynnin, memoir, promotion, Science Fiction, St. Cybi's Well, travel, Wales, writing
With a little luck, this week I’ll finish up another chapter, one I have been slogging away on for FAR too long. As is plainly clear to anyone who even casually reads this blog, I am not one of those writers who is able to just jump in and dash off page after page of text. I spend days thinking through scenes, how they integrate into the overall story. I’ll spend hours researching stuff which seems just completely tangential to the narrative, because I want everything to actually fit together properly. And I’ll often labor over a couple hundred words of text, trying to capture just the right tone. Whether I accomplish those goals in the end is another matter altogether.
So, for me at least, and for most of the time, writing is just hard work. And as I have noted both here and in personal communications, there are times I fear I have lost my way completely. That I am fooling myself to think that anyone will ever have the slightest interest in plowing through all that text. I’ve felt that way a lot over the last year. Gah.
And then, there are days like yesterday.
When, in about 90 minutes, about 1200 words just flowed out of me and onto the screen. When months of set-up and research all came together. Here’s a bit of that:
The back doors of the van were open, and there, cradled by her mother, was a little girl, about 8 years old. Her rich Indian coloration couldn’t hide the fact that there was already a blueish hue to the skin of her face and hands. With no hesitation, Megan stepped forward, glanced at the mother, and asked “how long has she had this color? The cyanosis?”
“Not long,” she said, in a plain Midwestern American accent. “Maybe 15 minutes.”
Megan looked to Darnell. “They didn’t give us any oxygen. About the only thing we have which might help are A.C.E. inhibitors, and I have no idea where those are in the crates they loaded. And they take too long to really work.”
Darnell studied her face, then turned to Joey. He started to say “I’m not sure …”
“Dar, wait,” said Megan. She looked at the girl, then at her parents. “There may be something else we can do.”
“What?” asked both Darnell and Joey, at the same time.
“Llangelynnin isn’t far,” said Megan.
“We passed through there just half a mile or so back,” said the girl’s mother. “But there’s not much there.”
“Not the town. The old church, up in the hills above. It’s about two kilometers,” replied Megan, looking from face to face. “It was a place of healing. Particularly for healing children.”
And the next bit, which I wrote today? It went back and referenced something I had planted in a scene 11 chapters ago. And which ties in to a critical scene in Communion of Dreams that I wrote about a decade ago. Even better, all of that was intentional — pieces of a much larger puzzle, finally falling into place.
Writing a novel is just brutal hard work. At least it is for me, most of the time.
But I no longer feel like I have lost my way.