Filed under: Amazon, Art, Augmented Reality, Book Conservation, Connections, Feedback, General Musings, Music, Publishing, Science Fiction, Society, tech, Writing stuff, YouTube | Tags: Amazon, Archangel, art, augmented reality, book conservation, bookbinding, direct publishing, feedback, jim downey, Legacy Bookbindery, literature, Marguerite Reed, music, Queen, reality, Science Fiction, St. Cybi's Well, technology, video, writing, www youtube
For fun, and to make someone’s year a little better, I recently rebound a friend’s SF novel, converting the paperback edition into a hardcover binding.
With my bookbinding skills it’s a fairly simple and straightforward process, but not a cost-effective one (so don’t ask me to rebind your favorite paperbacks). The result is usually very satisfactory and striking, and makes for a nice little present when I am in the mood to do something different from my usual conservation work.
Anyway, I made this book and mailed it to my friend where she works. She opened it and shared it with her co-workers, who thought it was “pretty darn cool.”
Which, you know, is cool and all. But consider: making that book, that physical object, took me maybe an hour and a half actual labor time. But I’m sure that it took my friend hundreds, if not thousands, of hours of labor to write that book. To conceptualize it. To make notes. To research. To stare at the blank computer screen in abject terror. To write the first draft. To edit. To stare at the words there in horror and disgust at how horrible her writing was (I assume this happened anyway, since almost every serious writer I’ve known goes through this multiple times with any book). To write the second draft. And then the third, after getting feedback from friends and editors. Et cetera, et cetera.
But what her co-workers thought was “pretty darn cool” was a simple physical object.
Now, I’m sure that if you asked them, her co-workers would say that her book — the written words — was also pretty darn cool. And maybe some of them have even read it.** Still, the fact remains that for most people written work is mostly an abstraction, one which takes real effort and time to understand and enjoy. Whereas a tangible artifact like an artisanal hardcover book can be handled and appreciated as reality.
People are funny, aren’t we?
**A confession: I haven’t yet myself, since I am still in the middle of doing battle with St Cybi’s Well, and I just can’t read long fiction when I am trying to write it, since it just messes up my own writing. But you can bet I will when I finally finish this book.
Filed under: Alzheimer's, Amazon, Brave New World, Connections, Emergency, Failure, Faith healing, Feedback, Flu, General Musings, Government, Health, Kindle, New Horizons, Plague, Politics, Predictions, Religion, Science Fiction, Society, Survival, tech, Terrorism, Violence, Writing stuff | Tags: Alzheimer's, atherosclerosis, blogging, Brexit, care-giving, Communion of Dreams, election, faith healing, finance, health, heart attack, Her Final Year, jim downey, luck, miracles, myocardial infarction, politics, predictions, religion, Science Fiction, St. Cybi's Well, stent, survival, technology, theocracy
2016 was odd. Just plain odd.
On the one hand, I had the same dumpster-fire of a year that everyone had, in terms of notable deaths, bizarre & unexpected election results here and abroad, and surreal news & social trends.
On the other hand, I’m alive. Which is something of a small (technological) miracle.
I now understand better (thanks to more discussion with my doctors, research, and experience) what happened with my heart, and what it really meant. Turns out that I didn’t have any plaque build-up even in the convoluted artery in question, as I initially thought. No, it was just that badly kinked, and probably had been all my life. I had started to notice it just because of normal aging, meaning that the normal parts of my heart were slowly getting weaker.
In the last six months or so I have finally been able to strengthen the 1/3 of my heart which had never had proper blood supply. Meaning that now I am actually in better cardiac health than I have ever been before. I walk three miles most mornings (5-6 days a week, usually), and don’t feel the slightest bit fatigued from it. The other parts of my 58-year-old body may limit me, but my cardiac condition isn’t a problem at all. Part of me wonders what it would have been like to have had this kind of stamina when I was young and athletic. Another part of me realizes that those limitations helped me develop awareness and self-discipline which I may have missed, otherwise.
Related to that, as mentioned in this post, early last year our financial situation stabilized for the good. We still need to be reasonably prudent about how we go through life, but I no longer feel as if I am hanging on by my fingernails sometimes. Without that change, I may not have felt secure enough to have my heart checked out when I did — meaning that I was very much at risk for the slightest little blood clot to trigger a massive heart attack.
Unrelated to any of that, the election lead-up and results also proved to be both a blessing and a curse for me. I was astonished at the results of both the Brexit and US presidential elections (and no, I’m not going to argue the point in comments — so just refrain from making any on this topic), yet it solved a problem for me with writing St Cybi’s Well. See, in the alternate time-line of Communion of Dreams, prior to the onset of the fire-flu, the US had become an authoritarian, semi-theocratic state. But I was having a really hard time explaining how we had gotten to such a point when actually writing SCW; everything I came up with just seemed too outlandish for the willing suspension of disbelief on the part of the reader.
Well, that’s not a problem any longer. No, I’m not saying that I think that the US is headed for an authoritarian, semi-theocratic state … but because of the rhetoric and rise in power of some groups both in the US and the UK, that is no longer an unimaginable future. As a result, I have been revising the finished chapters of SCW to reflect these new insights, and I think that the book will be *much* stronger for it.
So yeah, I have really mixed feelings about 2016.
Oh well, I suppose that at least I’m around to have them. And that’s a good thing.
*You should watch this sometime. Fun movie.
Filed under: Brave New World, General Musings, Government, Humor, Politics, Predictions, Science Fiction, Society | Tags: flash fiction, horror, humor, jim downey, politics, predictions, Science Fiction
A little horror flash fiction for your weekend.
“So, your assignment is to discuss how developments during the Trump administration led to the events of 2072. Be sure to cite specific administration policies to support your thesis.”
“Which Trump administration are you talking about?”
Filed under: Book Conservation, Brave New World, Connections, Emergency, Failure, Faith healing, Gardening, General Musings, Health, Predictions, Preparedness, Promotion, Psychic abilities, Religion, Science Fiction, Society, Survival, Travel, University of Missouri, Wales, Writing stuff | Tags: atherosclerosis, blogging, book conservation, bookbinding, Communion of Dreams, excerpt, faith healing, finance, gardening, Habaneros, health, heart attack, jim downey, Legacy Bookbindery, legal, luck, miracles, MU, myocardial infarction, predictions, psychic abilities, religion, science, Science Fiction, St. Cybi's Well, stent, survival, teaching, technology, tomatoes, University of Missouri
The past few months have been … eventful.
* * * * * * *
Why? What happened?
… in no particular order:
- Discovery, and subsequent treatment, of a major cardiac health problem.
- Completion of a full course of cardiac rehab.
- A substantial change in our financial situation resulting from the sale of property we owned.
- A bunch of resultant legal and investment research, planning, and changes which every adult should do but few of us ever get around to actually completing. Something about almost dying tends to focus the mind on such matters.
- A couple of extended out-of-state trips.
- My starting to train someone from the MU library staff in proper conservation techniques a couple of afternoons a week.
- A complete new computer system & software upgrade, with all the fun of transferring archives and working files.
And then there’s all the usual business of living and working. Having a couple of months of my life sucked up by dealing with the cardiac problems & treatment meant a lot of changes and trade-offs … but it sure as hell beats being dead from a massive sudden heart attack.
* * * * * * *
So, a couple weeks ago I went through and re-read the entire text of SCW to date, then started working to pick up the story again and bring it to a satisfactory conclusion. Here’s an excerpt from the next section:
Darnell looked out Megan’s bedroom window, across the little lane into the large field beside the Tanat. The field, where so recently cattle peacefully grazed, was now a small village of tents and temporary structures. Most prominent among them was a large marquee someone had found and brought from a nearby town. Make-shift walls had been constructed of large plastic-wrapped round bales of hay from down the road, their tough skin making them weather and even somewhat fire-resistant. The marquee was the main recovery center, where people would be brought from the church after healing, allowed to emerge from the deep sleep at their own pace.
He turned and looked at his sister, who was sitting on the side of her bed. “There’s no reason for you to get up. We can handle it. Go back to sleep.”
There was a faint blue-white shimmer to her skin which never left her now. It wasn’t like she was glowing, exactly, but more like she had a permanent echo of the healing energy which she had used so much in the past couple of weeks. She shook her head. Darnell wasn’t sure whether it was in response to his comment, or just an effort to clear away cobwebs of sleep. “It’s better if it comes from me. I’m known as the Guardian of the Shrine. That carries some official weight with the Church.”
* * * * * * *
I got my garden in late this year. No surprise, given how things went with spring and the early summer. So my tomato plants were not as far along as they could have been when the first waves of heavy storms hit in June. Since then we’ve had fairly regular poundings of storms. And it looks like the tomatoes are almost at the end of their producing for this year — a full month or so early. But between what I harvested, and extra tomatoes picked up at the farmer’s market, I’ve put up about 60 pints of chopped tomatoes. Not quite as much as I would normally like to have, but not bad considering the situation.
And my habanero plants seem to be doing OK this year. Won’t be a bumper crop, but it ain’t nothing.
* * * * * * *
The past few months have been … eventful.
And a lot of things which normally get done, didn’t. Or were handled in a more superficial way than I would usually do.
But that’s OK.
Filed under: Connections, Failure, Feedback, Health, Humor, Society, Survival | Tags: atherosclerosis, blogging, choice, diet, exercise, health, http://despair.com, humor, jim downey, Limitations, luck, motivational, penguins, science, society, stent, technology, Wikipedia
No, this is not about the ongoing fiasco which is the TSA. But it certainly could be.
Rather, it’s a chuckle I thought I would share about my cardiac rehab sessions. Remember those? I started them about a month ago, with all the expected advice about diet and exercise. Since then, except for a trip to California to visit family early this month, I’ve been a good boy about going to my sessions and putting in the time and effort to meet the goals they have for people who had a couple of stents installed like I had.
Actually, let me amend that: I met all the goals they have set with my first workout session. As in, for where they want you to be at the end of 36 rehab sessions. Today, at my tenth such session I hit twice those goals. That isn’t to say that I am some perfect physical example of athletic prowess; rather, it’s that typically when people have the procedure I had done, it’s usually because they have systemic atherosclerosis with all the problems that entails. I had a genetic defect. And while I am overweight and out of shape, I’ve managed to avoid the real damage of cardiovascular disease.
Anyway, I’ve been going to rehab 2 – 3 times a week, in addition to my regular morning walks and other yard/garden work. Frankly, I mostly hate it. I hate the TVs which are always on, tuned to some inane morning show. I hate the cheery encouragement of the nurses, particularly when they want to go over yet another handout they have about reading food labels and strategies for managing portion control when eating out. And I hate the pap of “motivational posters” featuring lovely outdoor images (which are fine) with mostly trite inspirational phrases in a very distinct typographical style. There are about a dozen of these things on the walls, mixed in with yet more posters about diet strategies and charts showing exertion and pain levels.
… I noticed this one, lost in among all the others:
It’s a little hard to read, with all the reflection/distortions, but it says: “Limitations. Until you spread your wings, you’ll have no idea how far you can walk.”
I think that this is absolutely hilarious.
I don’t know whether it was slipped in there by someone as a joke which no one else has ever caught, or it was seeded among the others to give cynical bastards like me a chuckle, but it works. I get a laugh out of it every time I go to rehab. It makes the grim process of exercising slightly less annoying. And I think that is wonderful.
Filed under: Brave New World, Connections, Failure, Feedback, General Musings, Health, Predictions, Preparedness, Science, Science Fiction, Society, Survival, tech | Tags: atherosclerosis, blogging, choice, diet, echocardiography, electrocardiography, exercise, health, jim downey, luck, privilege, science, Science Fiction, society, stent, technology, Wikipedia
I got an object lesson in privilege yesterday. My privilege.
I went in for my first session/assessment for cardiac rehab, following the stent procedure I had two weeks ago. The RN who did my assessment had been a cardiac surgery nurse, and knew her stuff. She also had all of my medical records pertaining to my procedure, and was completely familiar with my overall health and particularly my cardiac health (which, as I have mentioned previously, is actually really good).
We went through what is the normal procedure for such things: I got hooked up to a heart monitor, she checked my blood oxygenation, my blood pressure, my pulse. All were excellent. Then we went through my exercise and dietary habits in pretty thorough detail, discussing the few points where my eating habits deviate from ‘accepted medical recommendations’ (which are actually just ‘outdated medical recommendations’ such as limiting how many eggs you eat in a week to just one or two) according to the forms she had to fill out. All that was routine, and the same material I had been over with at least half a dozen other medical professionals in the last month.
Then we got into discussing just exactly what the condition of my heart now was, and what was recommended to help me improve it, post-procedure. She started out with the model heart on the desk, relating it to how my own chart compared, and complimented me again on the fact that I basically have no other evidence of atherosclerosis or plaque build-up anywhere in my heart other than the one problem section of my RCA that they stented. She said something to the effect of “genetics plays a role, but undoubtedly your regular walking every morning for the last decade has made a huge difference.”
“I’m lucky. I’ve been able to arrange my life so that I could take the time out to do that, for the last dozen years or so,” I said.
She nodded. “A wise choice.”
“Well, not one a lot of people can make. Most people can’t just schedule an hour for daily exercise. Like I said, I’m lucky. Very lucky. ”
“True,” she said. “But I always tell people that whether or not to exercise is a choice they make.”
I paused, considered, then nodded. We went on with the rest of the assessment.
Why did I hesitate? Because in that moment — in her statement of my ‘choice’ — lies a perfect summation of my privilege.
I’m a ‘virtuous patient’, in the eyes of most of the medical community. I’m a nice guy, who is well educated, professional. I exercise regularly, eat (relatively) healthily, don’t smoke at all, and rarely drink to excess. I maintain good social integration, and work to have a happy marriage and a good support network of friends. I even floss more than is probably average.
So, since I do all those things, in their eyes the quirk of a fault that is my kinked coronary artery isn’t really my fault. It’s just a small bit of bad luck. A small bit which can be forgiven, because I make a lot of ‘good’ choices about how I go through life.
But while I have indeed made a number of choices which can be considered to be virtuous, my privilege lies in having been able to make those choices. Realistically, how many people who are earning minimum wage are able to plan to go walking through their neighborhood (or at the local YMCA or city activity center or mall) every morning? How many people living in a food desert have access to plenty of fresh fruit and vegetables? How many people who are actually obese (I need to lose a good 50 – 60 pounds to be at my ideal weight), would be perceived as being lazy rather than working to maintain good health? How many people have the formal education and time to stay on top of modern medical research and discussion of best practices such that they can discuss the nuances of diet and exercise and the role it plays in cardiac rehabilitation?
I could go on and on. But I’ll refrain. For those who are already concerned with such matters, it isn’t necessary. And for those who seldom or ever consider how privilege affects health, it won’t be sufficient. However, perhaps a few people — you? — will take the opportunity that my privilege has presented to realize that how we judge the choices of others comes mostly from how we perceive them as people.
Filed under: Brave New World, Connections, General Musings, Health, Science, Science Fiction, Society, Survival, tech | Tags: atherosclerosis, blogging, echocardiography, electrocardiography, health, heart attack, jim downey, luck, masculinity, miracles, myocardial infarction, science, Science Fiction, stent, technology, Wikipedia
This is a follow-up to my previous post.
I just sent the following message to my primary care doctor:
I wanted to take a moment and thank you. Your recommendation that I take an echo stress test likely saved my life.
You’ll probably get the cardiac cath results from Dr W, but it may not include an observation he made when he first examined me: that had I come to his practice for a routine exam, presenting the same symptoms I told you, he probably would not have suspected such a serious condition. But the echo stress test clearly demonstrated that there was a major problem. And that the cath procedure showed just how bad it was: 95-99% blockage in the lower part of my RCA.
The seriousness of that condition was masked by my overall/otherwise heart strength. But it could have *very* easily resulted in a serious M.I. or even death. Had you not picked up on the subtle indications we discussed, and taken the prudent step of recommending the echo stress test, my true heart condition may not have been discovered until it was far too late.
So, thank you. Your intelligence, education, and experience probably have added decades to my life.
Why am I sharing this?
Because I got extremely lucky. And I want others to benefit from that luck, and my experience, if possible.
As it turns out, the overall condition of my heart is remarkably good. The strength and efficiency of that muscle is at the very top range for normal healthy people, or at the lower end you’d find in a serious athlete. Furthermore, there are no other indications of atherosclerosis or plaque build-up.
However, due to either a genetic or developmental defect, the lower part of my RCA is badly kinked/convoluted, creating a situation where eddies in the blood circulation form, and allowing what plaque I do have in my system to accumulate, like a sandbar will develop as a result of a bend in a river. In my case, that accumulation had progressed to the point where just the slightest additional clump of plaque could have closed off the artery completely, allowing a part of my heart to die. That’s a classic heart attack, folks.
But the strength of my heart overall was such that it almost completely masked the condition of my RCA. It wasn’t until I was up to about 90% of my heart rate maximum while taking the stress test that indications of the problem surfaced. And even then, just how bad the situation was wasn’t fully known until the cath procedure was done. But when the cardiologist went in and directly observed the condition of my coronary arteries, he saw the problem. And with about 90 minutes of hard work, corrected it with a couple of long cardiac stents.
That was just three days ago. I actually left the hospital the next morning, and have been playing catch-up on things since then.
Think about that: for 90 minutes, a team of medical professionals were playing roto-rooter with the inside of a major artery of my heart. I was completely awake and unsedated through the whole thing. The next day I left the hospital, walking on my own without difficulty. This morning I got in my usual morning walk of a mile. For about another week I have to take it a little easy, to let the puncture site in my femoral artery completely heal, and for the next year I need to take blood thinners, but otherwise I don’t need extraordinary care.
That’s pretty miraculous, in my opinion. One of the everyday miracles which surround us, and which we seldom give due consideration. Stuff that not too long ago would have been considered science fiction.
Anyway, here’s my advice, though you’ve heard it before: pay attention to your body. Don’t succumb to toxic masculinity. Or, if you’re a woman, to the illusion that you’re immune. If you think that something is going on, get it checked out. A little embarrassment at being wrong beats dying.