Filed under: Amazon, Bipolar, Connections, Faith healing, Flu, Predictions, Religion, Science, Science Fiction, Wales, Writing stuff | Tags: blogging, Communion of Dreams, Darnell Sidwell, fire-flu, free, Her Final Year, jim downey, John Bourke, Kindle, Llangelynnin, memoir, promotion, Science Fiction, St. Cybi's Well, travel, Wales, writing
With a little luck, this week I’ll finish up another chapter, one I have been slogging away on for FAR too long. As is plainly clear to anyone who even casually reads this blog, I am not one of those writers who is able to just jump in and dash off page after page of text. I spend days thinking through scenes, how they integrate into the overall story. I’ll spend hours researching stuff which seems just completely tangential to the narrative, because I want everything to actually fit together properly. And I’ll often labor over a couple hundred words of text, trying to capture just the right tone. Whether I accomplish those goals in the end is another matter altogether.
So, for me at least, and for most of the time, writing is just hard work. And as I have noted both here and in personal communications, there are times I fear I have lost my way completely. That I am fooling myself to think that anyone will ever have the slightest interest in plowing through all that text. I’ve felt that way a lot over the last year. Gah.
And then, there are days like yesterday.
When, in about 90 minutes, about 1200 words just flowed out of me and onto the screen. When months of set-up and research all came together. Here’s a bit of that:
The back doors of the van were open, and there, cradled by her mother, was a little girl, about 8 years old. Her rich Indian coloration couldn’t hide the fact that there was already a blueish hue to the skin of her face and hands. With no hesitation, Megan stepped forward, glanced at the mother, and asked “how long has she had this color? The cyanosis?”
“Not long,” she said, in a plain Midwestern American accent. “Maybe 15 minutes.”
Megan looked to Darnell. “They didn’t give us any oxygen. About the only thing we have which might help are A.C.E. inhibitors, and I have no idea where those are in the crates they loaded. And they take too long to really work.”
Darnell studied her face, then turned to Joey. He started to say “I’m not sure …”
“Dar, wait,” said Megan. She looked at the girl, then at her parents. “There may be something else we can do.”
“What?” asked both Darnell and Joey, at the same time.
“Llangelynnin isn’t far,” said Megan.
“We passed through there just half a mile or so back,” said the girl’s mother. “But there’s not much there.”
“Not the town. The old church, up in the hills above. It’s about two kilometers,” replied Megan, looking from face to face. “It was a place of healing. Particularly for healing children.”
And the next bit, which I wrote today? It went back and referenced something I had planted in a scene 11 chapters ago. And which ties in to a critical scene in Communion of Dreams that I wrote about a decade ago. Even better, all of that was intentional — pieces of a much larger puzzle, finally falling into place.
Writing a novel is just brutal hard work. At least it is for me, most of the time.
But I no longer feel like I have lost my way.
Filed under: Writing stuff | Tags: blogging, Charlie Stross, Communion of Dreams, direct publishing, feedback, George R.R. Martin, Her Final Year, jim downey, John Bourke, Kickstarter, literature, Neil Gaiman, predictions, promotion, Science Fiction, St. Cybi's Well, Winds of Winter, writing
I started this blog 9 years ago. Well, OK, that isn’t technically true until next Saturday.
That was 1,823 blog posts ago. And something on the order of a million words, give or take about a hundred thousand, according to my best estimates.
In addition, I helped write/compile/edit Her Final Year (which is available for free download today, btw). And rewrote/edited Communion of Dreams (also available for free download today) at least twice.
Oh, and I’ve been working on St Cybi’s Well. Have about a hundred thousand words done on that.
That’s between one and a half and two million words, depending on how you want to figure it.
And saying it that way sounds a bit impressive, and makes me feel better.
Well, see, I haven’t put up a blog post in almost a month.
And only 10 in the last three months.
And St Cybi’s Well was supposed to be finished more than two years ago.
I’m not entirely sure. It’s not writer’s block, exactly, since I have been making progress on SCW, all along. For the last few months I have been in a steep downturn in my usual bipolar cycle, but it hasn’t been so bad that it has caused me the sort of depressive lethargy which can be deadly — I’ve actually had a clear mind and have been fairly productive in other aspects of my life.
Perhaps it’s just laziness.
But I’m not lazy. Oh, I mean that I can be lazy, sometimes, but it is just not usually a defining characteristic of my personality.
I guess you could call it unprofessional. Un-workmanlike. But let’s go ahead and call it laziness.
You know, like the laziness of everyone who is overweight. They’re too lazy to go to the gym.
Or the laziness of everyone who isn’t rich. Because clearly, they just don’t work hard enough to earn money.
Or the laziness of all those people who don’t do well in school. Hey, a little more effort, and they could have graduated from an ivy league.
Or the laziness of being judgmental, thinking that you know what other people need to do to improve their lives. To meet your expectations.
Oh, wait, that really is lazy. Sorry.
PS: This isn’t meant in any way to excuse my failure to meet my obligations with my Kickstarter backers. Any such who would like a refund are certainly welcome to it; and for those who continue to tolerate my delay, I will make it up to them when the project is finished.
Filed under: Alzheimer's, Amazon, Feedback, Health, Hospice, Kindle, Science Fiction | Tags: Aliens, Alzheimer's, Amazon, blogging, care-giving, caregiving, Communion of Dreams, direct publishing, feedback, health, Her Final Year, jim downey, John Bourke, Kindle, memoir, promotion, reviews, Science Fiction, writing
New review up at Amazon:
New Age Sci-Fi, October 15, 2015By A ReaderThis review is from: Communion of Dreams (Kindle Edition)I borrowed this book from the Prime lending library as I was in the mood for a good old sci-fi first contact story and the books description lead me to believe that’s what it was. The first part of the book was exactly that. But then it shifted and did become more of a spiritual, new age-y, story about aura’s, healing hands, meditative states, etc. that just happened to take place on Titan. That’s not a bad thing, but it just wasn’t what I was in the mood to read at the moment. I should have suspected as much as the cover art and title depict nothing alien/space related, my bad. The story was interesting and kept my attention, the writing was good, the ideas presented interesting. But heads-up, if you’re in the mood for aliens, this might not be the book to read.
Well, I can’t really disagree, but … huh.
And there’s also a new review of Her Final Year you might enjoy.
Have thoughts about either one? Comment here, there, or maybe even write your own review!
Filed under: Alzheimer's, Amazon, Hospice, Humor, Kindle, Marketing, Promotion, Science Fiction | Tags: Alzheimer's, Amazon, blogging, care-giving, Communion of Dreams, free, health, Her Final Year, hospice, humor, jim downey, John Bourke, Kindle, promotion, Science Fiction
Except fish. Fish don’t like books. At least as far as I know.
Filed under: Alzheimer's, Amazon, Brave New World, Connections, General Musings, Guns, Kindle, Marketing, Promotion, Science Fiction, tech, Violence, Writing stuff | Tags: Alzheimer's, Amazon, blogging, Communion of Dreams, direct publishing, free, Guns & Money, Her Final Year, jim downey, John Bourke, Kindle, laser, Lawyers, National Interest, naval, predictions, promotion, railgun, Robert Farley, Science Fiction, technology, warship, writing
The biggest reason to build big ships may be the promise of electricity generation. The most interesting innovations in naval technology involve sensors, unmanned technology, lasers, and railguns, most of which are power intensive. Larger ships can generate more power, increasing not only their lethality (rail guns, sensors) but also their survivability (anti-missile lasers, defensive sensor technologies, close-defense systems).
Unmanned technology. Lasers. Railguns.
Tell me that ain’t living in a science fiction future.
Filed under: Alzheimer's, Connections, Diane Rehm, Health, Hospice, Kindle, NPR, Science, Society, tech | Tags: Alzheimer's, Alzheimer's Association, Alzheimer's Association International Conference, Alzheimer’s Disease Neuroimaging Initiative, amyloid plaque, blogging, care-giving, CNN, Diane Rehm, free, health, Her Final Year, hospice, jim downey, John Bourke, Keith Fargo, Kindle, Lauran Neergaard, Liza Lucas, Murali Doraiswamy, Nancy Donovan, NPR, science, tau protein, technology
It’s been seven and a half years since my mother-in-law passed away from Alzheimer’s. A couple years later, we published Her Final Year. Since then I have kept an eye on ongoing research concerning the disease, and have mentioned it here when I thought appropriate. This week, there are several new promising developments to come out of the Alzheimer’s Association International Conference in Washington, D.C.
First is a saliva test for metabolites which indicate brain changes associated with Alzheimer’s. From this CNN article:
Researchers from the University of Alberta in Canada analyzed saliva samples of fewer than 100 people, divided into three groups based on cognitive ability: 35 with normal aging cognition, 25 with mild cognitive impairment and 22 with Alzheimer’s disease.
Using protein analysis technology, researchers examined the saliva of each individual, analyzing nearly 6,000 metabolites, which are small molecules that are byproducts of chemical reactions in the brain.
The team then discovered specific biomarkers (or patterns of metabolites) in the groups with known Alzheimer’s or mild cognitive impairment, in comparison with the natural aging group, and tested the biomarkers as predictors of cognitive performance.
It’s a very small study, but if additional research into this area bares out the results, this could be a quick and inexpensive screening tool to help determine who may be at risk for Alzheimer’s. Because, as discussed in a very good segment on the Diane Rehm show this morning, early detection helps even though there are limited treatment options for Alzheimer’s (and other age-related dementias). That’s because there are things you can do to prepare for managing the disease: establish necessary legal protections (things like family trusts and durable power of attorney), educate family members and caregivers, investigate daycare and assisted living options, participate in drug and treatment trials, and similar.
Speaking of drug and treatment trials, the Alzheimer’s Association has a very useful online tool for Alzheimer’s patients, care-providers, and family members:
Alzheimer’s Association TrialMatch is a free, easy-to-use clinical studies matching service that connects individuals with Alzheimer’s, caregivers, healthy volunteers and physicians with current studies. Our continuously updated database of Alzheimer’s clinical trials includes more than 225 promising clinical studies being conducted at nearly 700 trials sites across the country.
This is just one of the new tools which have been made available since we cared for Martha Sr. Because in the last 7+ years, there has been a lot of research and a growing awareness that Alzheimer’s will touch nearly every family at some time.
One of the other pieces of information to come out of this week’s is that women seem to be more susceptible to the disease, and experience a faster decline in their mental abilities than men:
Older women with mild memory impairment worsened about twice as fast as men, researchers reported Tuesday, part of an effort to unravel why women are especially hard-hit by Alzheimer’s.
Nearly two-thirds of Americans with Alzheimer’s are women.
At age 65, seemingly healthy women have about a 1 in 6 chance of developing Alzheimer’s during the rest of their lives, compared with a 1 in 11 chance for men. Scientists once thought the disparity was just because women tend to live longer — but there’s increasing agreement that something else makes women more vulnerable.
There are a number of other factors which can have an impact on those numbers, of course. But even accounting for differences due to education, lifestyle, and social status, the discrepancy between men and women could not be accounted for. And having close family who had Alzheimer’s is a substantial risk factor, about doubling your chances of developing the disease. As is having any kind of major health crises requiring either hospitalization or surgery under general anesthesia. In each and every case, men seem to fare better than women.
That may not seem to be a “promising development”, particularly if you are a woman in the high-risk category/categories. But it is, in the sense that scientists are now coming to understand the disease much, much better than they did just a decade ago. When we cared for Martha Sr, there really wasn’t a good diagnostic tool to determine whether or not someone had Alzheimer’s — it was a diagnosis confirmed postmortem. Now there are very good imaging tools available for amyloid plaque and tau protein, as detailed at the Alzheimer’s Disease Neuroimaging Initiative.
As I noted above, there are still very limited treatment and drug options, though even there some hopeful results have been reported at the Conference. But real progress has been made. Alzheimer’s no longer needs to be a devastating diagnosis, something to be feared and hidden. If you, or someone you love, is showing any signs of memory or cognitive impairment, seek help. It’s even possible that through participation in some of the clinical trials you can be part of the solution.
PS: As noted previously, the Kindle edition of Her Final Year is available as a free download on the first of each month.